35019

edited by Herbert Gottweis and Alan Petersen

Routledge

xi, 234 p. : ill. ; 24 cm.

Includes bibliographical references and index

Biobanks and governance : an introduction / Herbert Gottweis and Alan Petersen -- Biobanks in action : new strategies in the governance of life / Herbert Gottweis -- The rise and fall of a biobank : the case of Iceland / Gisli Palsson -- Estonia : ups and downs of a biobank project / Rain Eensaar -- Patient organizations as the (un)usual suspects : the biobanking activities of the Association franKcaise contre les myopathies and its Genethon DNA and Cell Bank / Michaela Mayrhofer -- "This is not a national biobank" : the politics of local biobanks in Germany / Ingrid Schneider -- Governing DNA : prospects and problems in the proposed large United States population cohort / Amy Fletcher -- Governance by stealth : large-scale pharmacogenomics and biobanking in Japan / Robert Triendl and Herbert Gottweis -- UK biobank : bioethics as a technology of governance / Oonagh Corrigan and Alan Petersen -- Biobanks and the biopolitics of inclusion and representation / Richard Tutton -- The informed consenters : governing biobanks in Scandinavia / Lars ystein Ursin, Klaus Hoeyer, & John-Arne Skolbekken -- Framing consent : the politics of "engagement" in an Australian biobank project / Beverley McNamara and Alan Petersen -- Governing through biobanks : research populations in Israel / Barbara Prainsack

AU Gottweis, Herbert 1958- , AU Petersen, Alan R.,Ph. D

QH

441.2

.B43

2008

QH 441.2 .B43 2008

2008